news

한어Русский языкEnglishFrançaisIndonesianSanskrit日本語DeutschPortuguêsΕλληνικάespañolItalianoSuomalainenLatina

9-year-old lele is gone. half a year ago, due to high blood ammonia levels, his family took him to shanghai children's hospital for treatment, but he died in the hospital.

lele's father he sheng (pseudonym) reported to modern express that on the fifth day of hospitalization, lele suffocated for at least six minutes without timely rescue, and then fell into a deep coma until his death three months later. after the incident, the director of the hospital department admitted his fault to the family and said he would not evade responsibility. but what made he sheng dissatisfied was that the hospital's medical records did not mention this incident at all, and the phrases such as "timely rescue and no medical errors" made the family lose trust in the hospital.

on september 11, a person from shanghai children's hospital responded to a reporter from modern express that some details of the diagnosis and treatment involved the privacy of the children, so the hospital was not in a position to disclose them. the person said that the hospital would not evade the problem or shirk responsibility, and suggested that mr. he resolve the matter through the medical dispute mediation committee or judicial authorities.

the boy went to the hospital to investigate the cause of the disease and had an accident 7 days later.

on september 6, 88 days after lele's death, he sheng told the modern express reporter what happened.

he's family lives in shanghai. lele suffers from autism. in order to take care of their son, his wife even quit her job.

at the beginning of last year, lele was diagnosed with high blood ammonia levels. "after taking blood ammonia-lowering drugs, the index was well controlled, but we felt that it was not a good idea to keep taking the drugs, so we took him to shanghai children's hospital to further investigate the cause." he said that on march 6 this year, the family took lele to shanghai children's hospital, during which they did a lot of tests, but the cause was never found.

"we performed a liver puncture operation on the doctor's advice, and the child was admitted to the picu ward for monitoring." mr. he introduced that the operation was very successful and the child stayed in the picu for observation after the operation.

at noon on march 13, the hospital suddenly informed us that something had happened to lele. "when we went there, lele had already fallen into a deep coma," mr. he told the modern express reporter. the sudden accident left the family emotionally devastated and at a loss.

the patient was suffocated for at least 6 minutes before being rescued. the department director admitted that there was negligence.

on march 15, cui yun, director of the department of critical care medicine at shanghai children's hospital, and the head nurse met with the family and recounted the accident in front of mr. he and his wife. in the recording of the conversation provided by mr. he, cui yun admitted that after the monitoring device prompted an abnormality, the nurse did not check the child or notify the doctor. the child was in a state where the monitor could not measure the blood oxygen saturation and heart rate for at least 6 minutes, and possibly up to 11 minutes. it was not until the doctor passed by and found lele that he was rescued. in the recording, cui yun, director of the department of critical care medicine, said that "it was a very low-level mistake that caused very serious consequences."

"after the incident, lele was in a state of severe brain damage, which was irreversible. this result was very cruel for us. at that time, seeing that the hospital was so frank, we could only actively cooperate with the treatment and hope for a miracle to happen." he sheng said that after the incident, they had been restraining their emotions and actively cooperated with the hospital to handle the matter rationally.

however, the miracle did not happen. on june 11, lele's condition worsened and he eventually passed away. he said that after taking care of lele's funeral, he went to the local medical dispute mediation committee accompanied by the hospital to handle the matter.

the hospital summary stated that the patient was "rescued in time", but the family members pointed out that the medical records were suspected of being falsified.

"the hospital said during the interview on june 3 that the surveillance video was all there, but after lele left, when we asked for it again, they said it was gone," said he sheng. in the mediation suggestions he provided, modern express reporters noticed that the hospital did not provide the medical mediation committee with the monitor records and the surveillance video of the incident. for this reason, the medical mediation committee believes that: based on the known evidence, it shows that the medical party's rescue may have been delayed, which is causally related to the child's death, and it is recommended that the medical party refer to the main responsibility for mediation.

on august 27, mr. he went to the hospital to seal the medical records. this was the first time he saw the detailed diagnosis and treatment content. the record sheet was more than a foot high and recorded in detail the various examinations, surgeries, and medications that lele had taken after being admitted to the hospital. the statements in the death summary such as "rescued in time" and "no lessons learned" were unacceptable to mr. he.

on september 6, a modern express reporter saw in the medical records provided by mr. he that when lele was admitted to the hospital, all the examination indicators were normal. for a long time after the accident, hypoxic-ischemic encephalopathy, central respiratory failure, and brain dysfunction directly related to asphyxia were always important problems faced by lele in the diagnosis book. since may 31, hyperammonemia, which ranked lower, was put first and became the most important factor, and it continued until lele passed away. after lele passed away, hyperammonemia was also attributed to the direct cause of death and the fundamental cause of death.

strangely, in the medical records found by mr. he at the hospital, lele had 10 blood ammonia tests after admission, and most of them were within the normal range, with only 4 slightly higher than normal values. and after april 7, there were no more blood ammonia test records for lele. mr. he suspected that these were most likely fabricated by the hospital to conceal the truth and "whitewash" the medical records, thereby avoiding the fact that the child was not rescued in time for 6-11 minutes of suffocation, and pointing to hyperammonemia as the cause of death.

the hospital responded: we will not avoid the problem and suggest solving it through effective means.

on september 11, in response to the issues raised by mr. he, the shanghai children's hospital organized relevant personnel to respond to modern express. they said that in order to protect the privacy of minors, the patient's information and medical records are not convenient to be disclosed to the public, and they are unable to respond to certain details.

"the medical dispute mediation committee has intervened, and the relevant work is still ongoing and has not been completed." a hospital staff member told the modern express reporter that after the incident, the hospital and the patient had smooth communication, and there was no shirking of responsibility such as not answering the phone. after the medical dispute mediation committee intervened, the hospital also actively cooperated with the investigation and handling.

in addition, the hospital representative also stated that the hospital does not avoid the problem or shirk responsibility, but the hospital has no right to determine its own medical responsibility, which should be defined by relevant regulatory departments, judicial organs and other units based on the investigation results. at the same time, the hospital did not raise any objection or deny the mediation suggestions given by the experts of the medical dispute mediation committee, and the mediation work of the medical dispute mediation committee can be further carried out. it is recommended that the family of the child resolve the matter through effective channels such as the medical dispute mediation committee and judicial organs.

however, in a previous interview, he sheng had made it clear that what he wanted to report was not a medical dispute, but the hospital's suspected violations of discipline and regulations such as concealing the truth, concealing accidents, and falsifying medical records. "if i hadn't recorded it at the time, i might not even have the chance to speak!"

at present, mr. he has reported the relevant issues to the shanghai municipal commission for discipline inspection and the supervision department. modern express will continue to pay attention to the progress of this matter.

modern express/modern+ reporter song tijiawen/photo