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gather grains on the cloud and build a clear sky together: the 2024 international chronic myeloid lesion day and the 11th china chronic myeloid lesion patient conference online event was successfully held

2024-09-26

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on the occasion of the international chronic myeloid leukemia day and the 11th china chronic myeloid leukemia patients conference, the "gathering gram-negative cells in the cloud, building a clear sky: 2024 international chronic myeloid leukemia day and the 11th china chronic myeloid leukemia patients conference online event" hosted by new sunshine was successfully held on september 20. the event received a total of 95,000 online views.

this event is honored to invite well-known experts and patient representatives in the field of cml treatment. through online live broadcast, it provides a platform for communication and learning for the majority of cml patients. the event aims to popularize cml treatment knowledge, answer questions that patients are concerned about, and enhance patients' confidence in defeating the disease.

chairman liu zhengchen

at the beginning of the event, liu zhengchen, chairman of new sunshine, delivered a welcome speech, conveying blessings and gratitude to all cml patients and their families. he reviewed the origins of new sunshine and cml, and emphasized new sunshine's unremitting efforts in integrating resources, promoting policy advocacy, and providing patient support and services. liu zhengchen also thanked the medical staff, scientific researchers, and volunteers for their hard work, which has led to new breakthroughs in the treatment of cml, and promised that new sunshine will continue to bring hope and light to more patients.

expert lectures

in the expert lecture session, professor liu bingcheng from the hematology hospital of the chinese academy of medical sciences was invited to share his views on tki selection, drug discontinuation and fertility issues that are of concern to patients with cml.

professor liu bingcheng, hematology hospital, chinese academy of medical sciences

professor liu bingcheng gave a keynote speech on "tki selection, discontinuation and fertility for the treatment of cml". she proposed that the second-generation tki is superior to imatinib in the treatment of cml, especially for patients with medium and high risk. she explained in detail the tfr discontinuation criteria. in addition, the second-generation tki should be the first choice for patients with myelofibrosis. in addition, professor liu also explained the impact of tki on reproductive ability and provided professional guidance for fertility issues faced by male and female patients. professor liu's sharing benefited the patients online.

expert interview

during the interactive question-and-answer session of the expert interview, professor zhang yanli from henan cancer hospital and professor xu na from southern hospital of southern medical university gave professional answers to patients' concerns about the treatment of cml.

professor zhang yanli, henan cancer hospital

"for newly diagnosed patients, how should they quickly adapt and prepare?" professor zhang yanli answered that first, they should fully understand cml and not be too afraid; second, they should choose the right medicine according to their physical condition under the guidance of a professional doctor.

professor xu na, nanfang hospital, southern medical university

"drug selection for newly diagnosed patients," professor xu na replied. the choice of medication needs to be combined with the disease condition. second-generation tki drugs can be selected at the beginning of treatment, and there is no need to worry too much.

"take dasatinib as an example, how to face and deal with adverse reactions scientifically," professor zhang yanli answered, look at side effects scientifically and objectively, monitor them regularly when side effects occur, and reduce the dosage appropriately according to the doctor's orders, rather than changing the medicine.

the patients also raised questions such as, "what are the possible consequences of changing medications easily? how to decide when to change medications?" and "in what situations is it necessary to monitor blood drug concentrations? how to interpret blood drug concentrations?" the two professors gave professional and patient answers.

shared by cml patients

zhang yanqiang, a cml patient from henan, shared his story with the "cml corps", which brought confidence and encouragement to other patients. the "cml corps" was established under the leadership of professor zhang suli to promote cml patient education activities. zhang yanqiang shared some of his own gains.

patient representative zhang yanqiang

first, change of mentality. after learning about the patient education activities, he understood the disease better and his mentality changed. let go of the psychological burden and treat it well. secondly, compliance with medication is very important. zhang yanqiang set a timer alarm to remind himself to take medicine, and he would not turn off the alarm until he had taken the medicine. finally, there are "chronic myeloid legion" patient education activities in various regions of henan. zhang yanqiang invites all cml patients to henan to participate in cml patient education activities.

the online event ended with full care and gain for cml patients. i wish all cml patients will take the gains and confidence from this event, take medicines and check-ups on time, and have a better life.